Task Force on Social Networking Software

Medical Library Association

Microsoft HealthVault, RevolutionHealth, and Google Health make me feel L-yucky!

Filed under: discussion post — Gabe_Rios at 3:54 am on Wednesday, November 14, 2007

During the month of October, I staffed our Health InfoNet (Lister Hill Library’s consumer health information service with MedlinePlus GoLocal) booth at a couple of community events. Having staffed MedlinePlus exhibits for years, it never surprises me when I find out that 80-90% of the general public have NEVER heard of MedlinePlus. Most people we talk to at our booth say they use WebMD, some use Google or Yahoo, and others do not know what they use. I know this is anecdotal, but it makes think… “WOW! People are using whatever unfiltered information they find on the Internet and making decisions about their health care with that information.

On October 5, Molly Knapp’s post “Bill Gates wants your health records”, mentions consumer health record management initiatives from Microsoft, Google, and RevolutionHealth. At first, I thought GREAT! We need a service like this! Then after I took a look at the sites, I realized that in addition to managing your health record they provide features such as access to “quality” health information and a method to find local health care services/providers. Does that sound familiar? Hello? MedlinePlus?

In addition to providing the services mentioned above, Microsoft HealthVault actually links you directly to MedlinePlus topics and provides a “scrapbook” feature akin to My NCBI (formerly known as the “cubby” in PubMed). RevolutionHealth did not link directly to MedlinePlus topics but it did link to several resources linked within MedlinePlus such as Mayo Clinic and Cleveland Clinics. RevolutionHealth also provided some Web 2.0 functionality, which allows users to post questions and create their own health pages. Goggle Health is still being developed but knowing Google and it’s propensity for mashups I think we will see many of the same features plus some new ones we have not thought of as of yet.

I do not necessarily know whether or not any of these services are a bad thing as long as consumers are able to find accurate health information. One thing that I do know is that these companies have the money and resources to pour into development and promotion of these services; plus some of these companies are already widely used (think about meeting users where they are).

So let me throw out some questions for discussion…

  • What do you think of these services competing with MedlinePlus?
  • What is the potential impact of these new services offering one stop shopping for managing your health record, accessing health information, and locating health services?
  • How can/will Medlineplus compete with these services as their popularity/notoriety increases?
  • How can MedlinePlus promote its services better?
  • Should MedlinePlus be adding Web 2.0 services to their site?

6 Comments »

Comment by Educated Consumer

November 15, 2007 @ 9:47 am

How can this information benefit a human being?
Revolution Health’s information about ASTHMA…. “Emotional causes can be traced to stress from overbearing parents, or traumatic occurrences like death or divorce. Get a holistic minded MD naturopath or credentialed herbalist who will look at all aspects of any illness. Best of Health, seth”
How many children could DIE if their parents said to a child having an asthma attack…”you are just stressed out, that’s WHY you are having an asthma attack. Now go away and calm down!”.. After over 30 years in healthcare, I can tell you MANY would die if medical treatment is not seeked quickly!!
Look at “about us” on Revolution Health…
“The Revolution Health board of directors is chaired by AOL Co-Founder Steve Case, and its members include former Secretary of State Colin Powell; former Fortune 500 CEOs Jim Barksdale, Frank Raines, Carly Fiorina and Steve Wiggins; leading venture capitalists/financiers Miles Gilburne, Jeff Zients, John Delaney and David Golden.” Of course, we want people with NO Medical training telling us all of our health information.
Here’s another quote from their site… “We may share aggregated, non-personal information with advertisers regarding how our site is used.”… what person thinks is “non-personal”, may NOT be WHAT I think is “non-personal”. Why would you give out an information to “ADVERTISERS”? For profit??? Thanks!
Here’s more information from Revolution Health… “By registering, you provide us with the information we need to enable you to become an active participant on the Site and its related services.” I thought YOU were PROVIDING ME WITH INFORMATION… not me providing you with information??????
Come on folks, can’t you see that this the web site that try and teach the public to NOT GO THERE!!!!
Remember the “best rules” to follow and to teach the healthcare consumer…

Consider the source–Use recognized authorities
Look for an “about us” page.
Focus on quality–All Web sites are not created equal
See if the board members are experts in the subject of the site.
Look for the evidence–Rely on medical research, not opinion.. it’s hard to track down (”Seth from California”)
Look for dates on documents.
Beware of bias–What is the purpose? Who is providing the funding? Who pays for the site?
Check to see if the site is supported by public funds, donations or by commercial advertising. See if it is clear when content is coming from a non-commercial source and when an advertiser provides it.
Protect your privacy–Health information should be confidential. Does the site have a privacy policy and tell you what information they collect?
For example, if the site says “We share information with companies that can provide you with useful products,” then your information isn’t private.
If there is a registration form, notice what types of questions you must answer before you can view content. If you must provide personal information (such as name, address, date of birth, gender, mother’s maiden name, credit card number) you should refer to their privacy policy to see what they can do with your information.
Consult with your health professional–Patient/provider partnerships lead to the best medical decisions.
Abridged from http://www.nlm.nih.gov/medlineplus/healthywebsurfing.html

Comment by pilgrimtinker

November 16, 2007 @ 1:53 pm

Great questions, Gabe. I will be posting my thoughts on Learning to live at pilgrimtinker@blogspot.com. - Pilgrimtinker

Comment by Gabe Rios

November 16, 2007 @ 2:36 pm

Good comments “Educated Consumer” and thanks for the link to MedlinePlus’ Healthy Web Surfing. I agree with you that we need to “teach the public to NOT GO THERE!” We, as information professionals, are savvy enough to be checking for authority, bias, currency, etc… however, most average Joes and Janes are not that savvy. The challenge I think is how to make consumers more aware of these guidelines. We DO handout the “Healthy Web Surfing” guide when we exhibit at health fairs; but I am curious about what other strategies you or others might be using. I keep wondering if partnerships with NLM/Medlineplus mixed with some Web 2.0 technologies that engage and or connect consumers with our libraries (a local resource) might increase their awareness of using quality information to make decisions about their health.

Comment by Bart Ragon

November 17, 2007 @ 10:42 pm

If you are in the Bethesda, Maryland area on December 10th you may want to consider going to an event titled “Bridging the Gap between Behavioral Science and Consumer Health Technologies” session at NIH. The description from the Web site states:

<i>Hear health leaders at Microsoft, Intel, and Google* discuss their vision and strategy for applying consumer technologies and solutions to the healthcare industry. Learn how these ‘Health IT’ directors envision publicly-funded research influencing the direction, design, and/or development of their health IT strategy and product offerings.
</i>

When was the last time Intel, Microsoft, and Google were in the same room talking about Healthcare, the Internet, and consumer technologies?


https://www.informaticsinaction.com/default.asp

Bart

Comment by Beth Layton

November 21, 2007 @ 5:31 pm

Health care consumers (that’s almost all of us) don’t know what websites are accurate and useful. Realistically are there enough medical librarians around to tackle this task? Even more seriously, are we funded to handle this?

I think an alternate question is, do we fight them or join them? I took a brief look at HealthVault ™ and found they display MedlinePlus ® info. Google Health is in (way) beta. RevolutionHealth has multiple content sources (that’s what they call them—I like the term.) See http://www.revolutionhealth.com/about/content-sources. It would be great if someone did a real review of these sources and compared them to MedlinePlus.

Gabe questions “How can/will Medlineplus compete with these services as their popularity/notoriety increases?” Perhaps we can increase the interest in consumer health information as these services become known/popular.

Just my thoughts…

Comment by Pilgrimtinker

November 26, 2007 @ 12:03 am

Hey Beth,

Great thoughts. I found these questions timely as well and I did review both Healthvault and Revolutionhealth as they compare to MedlinePlus. I’ve been posting about them at Learn to live (pilgrimtinker@blogspot.com) because it would be a bit much to include here.
Regards- Pilgrimtinker

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